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C.U.R.E. LHON

Our mission is to improve the lives of others by creating awareness and an exciting yet productive fundraiser aimed at raising money to help researchers find a cure. We are committed to help find a cure as quickly as possible to prevent the future suffering of Jeremy's siblings, LHON afflicted siblings, and other carriers of the disease.

Leber’s Hereditary Optic Neuropathy (LHON) symptoms usually begin as sudden, painless loss of central vision. The classic pattern is for one eye to suddenly lose central vision, then on average 8 weeks later the other eye also loses central vision, though many variations on this pattern are possible. After this “acute phase,” severe visual loss in both eye remains. Reading, driving and recognizing faces are impossible.

About 100 people in the United States lose vision due to LHON each year, joining the 4,000 or so Americans who are already vision impaired due to LHON. Thousands more carry a LHON genetic mutation, and they could suddenly lose their vision at any time. It’s estimated that about 35,000 people worldwide have LHON vision. Because it is an orphan disease, there is only a limited amount of research taking place regarding LHON. As a rare disorder with limited funding, it’s important for those affected by LHON to encourage their friends and associates to participate in fundraising to support research.