The Band of Parents, Evening of Hope Benefit, Raising Over $150,000 for Neuroblastoma Research.

Neuroblastoma is a cancer of the sympathetic nervous system and the most common cancer diagnosed in infants. In 2/3rds of cases it is undiagnosed until it has metastasized and requires many rounds of harsh treatments. For those with stage IV High Risk disease – 5 year survival rates are about 30%.

The Evening of Hope benefit was held at AVENUE NYC on April 26, 2012. The event honored Shirley Staples, Parent Chair of Kids Walk for Kids With Cancer and Dr. Nai-Kong Cheung, Head, Neuroblastoma Program at Memorial Sloan-Kettering Cancer Center(MSK) was the special guest speaker. Cocktails and festive food were served as guests mingled and bid on sixty amazing silent auction items. Family, friends, colleagues and co-workers came out enforce to raise over $150,000 for neuroblastoma research.

The event was co-chaired by Dr. Jill Ostrager-Cohen and Dr. Tani Sanghvi. Jill and Tani have been friends since high school and have each been personally affected by neuroblastoma- a rare and deadly pediatric cancer of the sympathetic nervous system. Neuroblastoma is the most common cancer diagnosed in children under the age of 4. Jill’s son, Andrew, was diagnosed at three and a half– he has been in treatment at Memorial Sloan-Kettering Cancer Center- and is currently showing no evidence of disease (NED). Tani’s nephew, Amit, was treated at MSK over 10 years ago and he continues to be NED. They are grateful for the treatments that have saved so many lives and wanted to help ensure that research continues. They know that their personal stories are more the exception than the rule and many children are still fighting for their lives.

The Band of Parents began in 2007, with a group of parents whose children were in treatment for neuroblastoma at Memorial Sloan-Kettering Cancer Center. Families met with Dr. Nai-Kong Cheung to learn what therapies lay on the horizon and when they might be coming to clinic. Many children were losing the battle with the disease and families were desperate for new treatments that could heal their children. Treatments were painful and had significant side effects. Dr. Cheung explained the harsh truth- there were potential treatments that needed to be tested, but the funding was not available. Unlike adult cancers, pediatric cancers receive very little research funding from the NCI and other private sources. Neuroblastoma is considered rare even for pediatric cancer and receives a very tiny portion of this already small funding pool- so these parents whose children were in need of miracles took on the yoke of fundraising for research.

That day they became the “Band of Parents- Bound by Hope” working together to fund research which could hold the key to saving children battling neuroblastoma. Since then, members of the Band of Parents have held bake sales, run/walks, garage sales, dinners and golf tournaments all to support neuroblastoma research. All members are regular parents who have children fighting for their lives. They have pooled their talents and connections to create amazing results. The Band of Parents has emerged as a force for hope- granting over $4 million for research and they will continue to fund promising research until all children can beat neuroblastoma.

More About This Charity

Region

Northeast

Category

Health and Well Being

Name

Band of Parents

Mission

Band of Parents is a registered 501(c)(3) non-profit that raises funds for pediatric cancer research and provides a support network for families with children who are undergoing treatment for Neuroblastoma. We are bound together by the hope that a cure will be found in our time. Our goal is to further the research and drug development desperately needed to save more children. Since the Band of Parents began in 2007, we have committed more than $4 million dollars to Neuroblastoma research.

Impact

  • This Achievement raised $150,000
  • This charity raised $301,777 in the past year
  • This Achievement helped 800 people in the past year
  • New clinical trails for Neuroblastoma treatments will be funded, so that some day the 800 plus children diagnosed each year will beat this disease.

Works In

United States

Learn More

www.bandofparents.org

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